• Stay Connected

Tag Archives: SMARD

We Can All Learn Some Humility From Hunter Pageau

On NYBERG, a second appearance on the show for Hunter Pageau of North Haven who is now 13. Hunter has an extremely rare disorder known as SMARD, spinal muscular atrophy with respiratory distress. There are only about 80 cases documented in the world. Hunter spreads awareness about his disease as a student at North Haven Middle School. He’s a Read more…

Posted in Featured, NYBERG Interviews | Also tagged , , | Comments closed

This Connecticut 9-Year Old Will Melt Your Heart

Nine year old Hunter Pageau, a 4th grader from North Haven, Connecticut is one of the most inspirational people I have ever met, young or old. Hunter is full of love and hope even though he is on life support 24-7. All he does is smile and remains hopeful for a cure for his extremely Read more…

Posted in Featured, NYBERG Interviews | Also tagged , , , , , , , , | Comments closed